It feels like Codi is going backwards. He is losing bladder control and weight. Grr its so frustrating
my son has STATIC ENCEPHALOPATHY and if you search the web you will find hardly anything on it so here is his story.
Thursday, June 7, 2012
Sunday, May 13, 2012
5/13/12 update
School is almost out and I know Codi is ready for a break. I also know he needs school to keep is routine alive. *Sigh* I love my kids but I give em two weeks tops before I am wishing school didnt let out for the summer
Sunday, March 4, 2012
Help
I would love to talk with an adult that has this and maybe they can help me deal with my sons dissorder better.
Wednesday, February 22, 2012
Stuff we are looking into for Codi
Retaining his attention
Dyslexia
Flat feet
What can be done to help his hands???
OCD??
Tracking and scanning one to one
Sunday, February 19, 2012
Venting
This diesae Codi has is so frustrating. No one knows anything "he is a mystery " is what his teachers say.
Saturday, February 18, 2012
Drugs
In this day of modern medicne we should have a pill or shot thats fixes everything. But we dont and it is frustraing
Tuesday, February 14, 2012
Bed time
Bed time is a challenge because one he has to sleep with his overhead light on all night. If you turn it off he wakes up in an instint. Two he has waking nightmares. In where he will have a nightmare and half wake up. He will have his eyes open and be talking but not making sence. He will be talking as if he is still is his dream One time his whole class was in his room beating him up and I had left a galon of milk in the corrner of the room. He kept yelling at me to take the milk out of his room and of course there was none. But that was his dream.
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